Monday, July 30, 2012

Happy Mid-Summer Everyone and a
Happy Birthday to Hap and his brother Ray!


Hap is going on week 40 for being in the clinical trial and receiving

Avastin and Temsirolimus treatments. Headaches, nose bleeds and

fatigue continue to be the side effects. These past two weeks Hap had a bout with shingles on the torso area...probably stress related.

June and July have been very difficult months for the Luna family and the Rowan family. In June we lost our dear mom unexpectedly after complications following a procedure for her cancer. Then in July Hap's dad passed after battling renal disease for years. It has truly been a challenging time for our families.

Good News to Share!

Hap and Mary have been working hard to bring awareness to neuroendocrine tumor cancer. With the help of Senator Oroho they have been making trips to Trenton for the purpose of passing Bill SJR-12. They gave testimony with Hap's trial doctor, Dr. Reidy, to promote this bill which would make every November 10th a Neuroendocrine Tumor Cancer Awareness Day in the state of NJ. This bill passed unanimously in the health sub committee and the full Senate. We are now waiting for the final step in the Assembly? If it passes there, it goes to the Governor's desk for signing. WooHoo!!!

Also want to share that Team Rowan members and all their supporters raised over $28,000 for the 2012 Cycle for Survival which funds rare cancer research. Team Rowan is really proud and thankful to all their supporters.

After a few years of raising funds for rare cancer research Hap and Mary have created their own foundation named "One Inning at a Time", named appropriately after this very blog. This foundation should be launched next month.

Saving the best for last...The last scans showed reduction in the tumor size of the pelvic tumors. This has been a first since Hap was diagnosed. There was also some reduction on two of the liver tumors. I think he has two new angels in his outfield. Hap's doctor is working hard at getting his treatment at Basking Ridge, which is closer to home; but so far, no luck. Thank God for friends and family who continue to take Hap into the city which is NEVER a quick trip.



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